Lessons from Jacob: A Disabled Son Teaches His Mother about Courage, Hope and the Joy of Living Each Day to the Fullest

by Ellen Schwartz

Giving birth to Jacob was supposed to be the happiest moment in Ellen's life, but for her and her husband Jeff, the joyful moment turned into their worst nightmare when they learned Jacob had Canavan a devastating cerebral degenerative disease of infancy. Jacob would never see, speak, walk, or sit up. There ie no treatment or cure. He would die. Maybe in six months. Maybe in two years. No one knew.

In some ways, the worst was yet to come, for not only was Jacob born with a death sentence, but his disease would require as many as eight serious operations within his first year. The unbearable helplessness of a parent forced to endure with impotence the endless agony of a son in constant pain. He required constant, round-the-clock supervision. The strain and stress on the family was unbelievable.

And yet, as Ellen painstakingly chronicles in this raw but unforgettable memoir of a mother and her son, "Despite all his disabilities, Jacob loves life more than anyone I have ever met. He shows me how to live each day to the fullest."

Jacob is eight years old. He continues — despite the odds — to live each day to the fullest.

Genres: Nonfiction

144 pages, Hardcover

First published April 13, 2007

Reviews

[Moshe Mikanovsky · Rating 3 out of 5]

A story of courage and love. Good lessons for life in the last chapter.

[Sujata · Rating 5 out of 5]

An excellent read. I found Ellen talked about how she cared for her son. Her house sounded very expressive and fun. I liked reading about a reference to Lorenzo's Oil.

[Sherry · Rating 5 out of 5]

I enjoyed this book and found it very easy to relate to Ellen and her situation. She is inspiring for anyone with or without a disabled child.