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“Lily had lived with the same pain for so long it felt like a part of her. The worst days, though, were when the pain was different. When it came faster, or harsher, or fiercer than she was used to. When it prickled instead of throbbed. When it attacked her right ankle instead of her left knee. When it woke her up at night instead of aching dully first thing in the morning. On those days, her standard-issue pain was replaced by something different and frightening, something that took over her body and left her without the slightest clue of when, or even if, it would release her.
Those times, her pain wasn’t a part of her anymore. Those times, she was a part of it.”
― As I Descended
Those times, her pain wasn’t a part of her anymore. Those times, she was a part of it.”
― As I Descended
“What a person did when they were in pain said a lot about them.”
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“Sometimes, this disapproval of how you are managing your pain crosses over to disbelief that you are in as much pain as you say you are. They don’t believe that your pain is a legitimate enough reason to rest or nap or cry or take narcotic medications or not go to work or to go to the doctor. They might think that you are making too big of a deal out of it. They doubt the legitimacy of the pain itself.
This kind of stigma is the source of the dreaded accusation that chronic pain is “all in your head.” It’s as if to say that you are making a mountain out of a molehill.”
―
This kind of stigma is the source of the dreaded accusation that chronic pain is “all in your head.” It’s as if to say that you are making a mountain out of a molehill.”
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“I often wished that more people understood the invisible side of things. Even the people who seemed to understand, didn't really.”
― Determination
― Determination
“The stigma of chronic pain is one of the most difficult aspects of living with chronic pain. If you have chronic pain, people can sometimes judge you for it. Specifically, they can sometimes disapprovingly judge you for how you are coping with it. If you rest or nap because of the pain, they think you rest or nap too much. If they catch you crying, they become impatient and think you cry too much. If you don’t work because of the pain, you face scrutiny over why you don’t. If you go to your healthcare provider, they ask, “Are you going to the doctor again?” Maybe, they think that you take too many medications. In any of these ways, they disapprove of how you are coping with pain. These disapproving judgments are the stigma of living with chronic pain.”
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Danielle’s 2024 Year in Books
Take a look at Danielle’s Year in Books, including some fun facts about their reading.
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